Saturday 15 July 2017

You know those candid pictures, that when you look back at them you see how much was really captured in them - this is one of those pictures.  It was from our family photo shoot back in January, before Wayne started chemo. 

So here we are now, I so very much want to do a post with just good and positive news,  but that's not going to happen today.  Wayne had his repeat blood work this week, with the plan for us to just call in and get the results and keep coasting through the summer.  Once again, a change of plans.  When we called for the results we were told we had to come in to see the Dr. - of course, we didn't have a good feeling about that.  We met with the Dr. first thing yesterday morning - Wayne's PSA had increased significantly [was 91, now, just a few weeks later, it is 394].  The doctors have said all along that his cancer was very aggressive, but this number even shocked them.  This is way more aggressive than they thought.   The oncologist had already consulted with a number of other doctors before we met with her.  They need to do some biopsies, so they can analyze the cells and put a name to this beast.  Wayne goes for a bone marrow biopsy on Wed., and they will also need to do a bone biopsy [don't have a date for that one yet].  They are concerned there may be a type of small cell cancer as well - if that is the case, there is not much they are able to do and it would go very quickly.  If it comes back negative, and it is still the usual prostate cancer, we will go to Princess Margaret to see if they could offer anything else.  In the mean time, he is starting a monthly injection to try and help strengthen his bones and hopefully ease some of his pain.  They are also working on getting approval for another drug for him to start, which may help slow things down. They are hoping to have that in place to start next week as well.

Looking back over the last couple weeks, Wayne has been more tired and having more pain as well.  I guess on some level we knew things weren't going how they should be, but we always try and stay positive.  That is definitely getting harder. 
Yet we are so thankful for the supportive circle of people around us and our children. We are still standing [well, Wayne's laying more than standing these days!], but we are rooted firm in Faith - not knowing the plans for us, but knowing our God loves us deeply. We are trying hard to hold on to Hope and we are always surrounded by so much Love.

We are also keenly aware of the needs of so many people around us - who are also struggling with disease and decisions, who are facing loss and who have recently lost.  We live in such a broken world, yet we do not live without hope - we pray for you all.